With Parkinson’s disease, your long-term goal is to remain healthy and active, to minimise its impact on your life and to maintain the best quality of life possible. Remember that both you and your healthcare team share this goal!

If possible, try to stay active in your own care. Find out when your medication is likely to take effect, how long it is likely to provide you with good symptom control and take note of any possible side effects.

For information on creating an easy environment to live in at home click through to the virtual house here.

How can I help manage my disease?

 
 
Being told that you have Parkinson’s disease can be overwhelming. You may feel many conflicting emotions ranging from disbelief and denial to fear, anxiety and sadness. You may find it a relief that a reason for the problems you have been experiencing has been identified. You may be concerned about becoming physically, emotionally and economically dependent on others. It is only natural to worry about the responses of loved ones, employers and work colleagues, and, if symptoms are obvious, with the reactions of total strangers.

Parkinson’s disease is a very individual condition and affects everyone differently – if somebody else you know or someone in your family has had Parkinson’s, do not assume that you will experience the same symptoms or problems. Learn to recognize your own symptoms and share any observations with your doctor and healthcare team. Although you may often feel anxious or discouraged, try not to let others – including your family and your doctors – make important decisions for you.

One of the best ways to deal with any fears or worries about Parkinson’s disease is to find out as much as you can about the condition. As well as talking to your healthcare team, books and information on the internet, including the websites of various Parkinson’s disease organisations, can be useful sources of information. Contact with people who know what you are going through can be especially helpful. Why not ask your doctor, nurse or social worker about Parkinson’s disease support groups in your local community?

Download patient leaflet 2 to find out how to manage your diet, lifestyle travel and work life.